Resources

The following links are ones that over the years we and our clients have found to be helpful resources when faced with serious injury or the loss of a loved one. We hope they can be of assistance to you.

HELPFUL SUPPORT GROUP LINKS

Brain Injury Support Groups

Breast Cancer Support Groups

Cancer Support Groups

Cerebral Palsy Support Groups

Cervical Cancer Support Groups

Colon Cancer Support Groups

Grief Support Groups

HELPFUL INFORMATION AND ADDITONAL RESOURCE LINKS

Birth Injury

Brain Injury

Cancer

Other Health Information

Helpful Government Agency Links

Helpful Private Organization and Association Links

Helpful Medical Information Links

Helpful Drugs and Medication Links

Helpful Patient Safety Links

Helpful Legal Links

Helpful Medical Insurance Coverage Links

Brain Injury Support Groups

Head Injury Rehabilitation & Referral Services, Inc.
http://www.headinjuryrehab.org/
One Church Street, Suite 102
Rockville, MD 20850
Tel: 301-309-2228 Fax: 301-309-2278
Email: headinjuryrehab@comcast.net
Montgomery County Services: 301-572-6585
Prince George’s County Services: 301-429-2171 x116

The Child Resource Center
http://cerebralpalsy.org/

Breast Cancer Groups

http://www.lifewithcancer.org/
5:30-7 p.m. Wednesday, Inova Fairfax Hospital for Children, Radiation Oncology Conference Room, 3300 Gallows Rd., Falls Church.
Free; registration required. 703-776-2841 (posted 11/27/08)

Young Women’s Breast Cancer Support Group
5:30 PM til 7:00 PM
Georgetown University Hospital
Support group for women with breast cancer, age 40 and under.
Meets the first Wednesday of every month, 5:30 pm – 7:00 pm.
Registration required.

Contact: Joanne Assarsson, LICSW, OSW-C, (202) 444-3755, or Mercedes Watson, RN, (202) 444-3012, co-facilitators

Lombardi Cancer Center Breast Cancer Support Groups
http://lombardi.georgetown.edu/patient/patient_family/social_work.html
(202) 444-4000

George Washington University – Breast Cancer Support Groups
900 23rd St., NW
Washington, DC 20037
Phone Number: (202) 715-4000
Toll Free Number: 1-888-449-4677

Cancer Support Groups

Life With Cancer
http://www.lifewithcancer.org/
Offers the following groups at the Life With Cancer Family Center, 2700 Prosperity Ave., Suite 100, Fairfax.|
Free; registration required. 703-776-2841

  • Brain tumor group, noon-1:30 p.m. Tuesday.
  • Melanoma group, 7-8:30 p.m. Wednesday. (posted 11/27/08)

Cerebral Palsy Support Groups

United Cerebral Palsy Associations, Inc.
http://www.ucp.org/
1660 L Street N.W., Suite 800
Washington, DC 20036

(202)776-0406; (202) 973-7197 (TT)
(800) 872-5827 (V/TT)

National Rehabilitation Information Center (NARIC)
http://www.naric.com/
8455 Colesville Road
Suite 935
Silver Spring, MD 20910-3319

(301) 588-9284 (TT/Voice); (800) 346-2742

Epilepsy Foundation
http://www.epilepsyfoundation.org/
4351 Garden City Drive
Suite 500
Landover, MD 20785-7223

Cervical Cancer Support Groups

National Breast and Cervical Cancer Early Detection Program
www.cdc.gov/cancer/nbccedp/index.htm
1-800-CDC-INFO (24-7 screening information hotline)
Online and phone access to free or low-cost mammograms and cervical cancer screening (PAP tests) nationwide and in DC; quick links to basic information on breast and cervical cancer

Gynecologic Cancer Foundation
http://www.thegcf.org/
1-800-444-4441 (physician referrals, information); 312-578-1437
The foundation of the Society of Gynecologic Oncologists; works to increase public awareness of gyn cancers; see two other related sites:

http://preventcancer.org/prevention/preventable-cancers/cervical-cancer/ – provides information, screening information on new vaccine for cervical cancer, resource information

http://www.wcn.org/ – Women’s Cancer Network. Information on reproductive cancers, trials, finding a gynecologic oncologist

National Cervical Cancer Coalition
http://www.nccc-online.org/
1-800-685-5531
Grassroots patient advocacy organization focused on providing information, support, resources

Colon Cancer Support Groups

Colorectal Cancer Network
http://oreilly.com/medical/colon/news/organizations.html
PO Box 182
Kensington, MD 20895-0182
Phone: (301) 879-1500
Colorectal Cancer Network offers support groups; aggressive awareness, screening, and early detection programs; and legislative action.

Hereditary Colorectal Cancer Polyposis Registry
Johns Hopkins Hospital
550 North Broadway, Suite 108
Baltimore, MD 21205
Phone: (888) 772-6566
Hereditary Colorectal Cancer Polyposis Registry provides an opportunity to participate in research on hereditary colorectal cancer.

COLON
Run by Bill Glenning and Gilles Frydman, offers medical discussion and emotional support for all colorectal cancer survivors and their loved ones. COLON has about 500 subscribers.

Colon Cancer Alliance
http://www.ccalliance.org/

Grief Support Groups

Capital Care Hospice
http://www.capitalcaring.org/service/hospice-services/
For those who have experienced the death of a loved one, 6:30-8:30 p.m. the second and fourth Wednesdays of each month, Capital Hospice, 6565 Arlington Blvd., Suite 500, Falls Church. Free. 703-538-2074 (posted 11/6/08)

Haven of North Virginia
http://www.havenofnova.org/

Individual support by appointment, Haven of Northern Virginia, 4606 Ravensworth Rd., Annandale. Free. 703-941-7000 (posted 11/27/08)

Grief Support for Adults
7:30-9 p.m. the first and third Thursdays of each month, school building at Church of the Nativity, 6400 Nativity Lane, Burke. Free. Call Carol Mack at 703-533-2951 (posted 11/27/08)
HELPFUL INFORMATION AND ADDITONAL RESOURCE LINKS

Birth Injury

CDC: Pregnancy Information
http://www.cdc.gov/ncbddd/pregnancy_gateway/

Resource providing tips on how to have a healthy pregnancy and preventing problems during pregnancy. Also provides information on birth defects, family planning and other important articles for future parents.

The Child Resource Center
http://cerebralpalsy.org/

Epilepsy Foundation
http://www.epilepsyfoundation.org/

Information regarding epilepsy causes and treatment.

KidsHealth
http://kidshealth.org/

Provides doctor-approved health information about children from before birth through adolescence.

March of Dimes
http://www.marchofdimes.com/home.asp

Devoted to improving the health of babies by preventing birth defects and infant mortality.

National Center on Birth Defects and Developmental Disabilities

http://www.cdc.gov/ncbddd/
From the Centers for Disease Control and Prevention, promoting fetal, infant and child development; preventing birth defects and childhood developmental disabilities.

National Rehabilitation Information Center (NARIC)
http://www.naric.com/nidrr/

Information on cerebral palsy.

Office of Women’s Health: Pregnancy
http://www.fda.gov/womens/registries/default.htm

Information provided by the Food and Drug Administration on topics important to women expecting a child or trying to become pregnant. Some topics include the use of misoprostol during delivery, food safety, use of medications during pregnancy among others.

Planned Parenthood
http://www.plannedparenthood.org/

Non-profit organization providing comprehensive reproductive health care services, and promoting research and advancement of technology in reproductive health care.

United Cerebral Palsy Associations, Inc.
http://www.ucp.org/
Leading source of information on cerebral palsy and patient advocacy.

Brain Injury

Head Injury Rehabilitation & Referral Services, Inc.
http://www.thesamegroup.org/
Affiliated with the Rock Creed Foundation. Provides mental health services in a variety of Maryland counties

Cancer

American Cancer Society
http://www.cancer.org/

Types of cancer, prevention, treatment
CANCERLIT
http://www.nci.nih.gov/search/cancer_literature/

National Cancer Institute’s database for literature on more than 90 cancer-related topics

Cancer Schmancer Movement
http://www.cancerschmancer.org/

Promotes prevention and early detection of cancer

Colon Cancer Alliance
http://www.ccalliance.org/

Information on prevention and support for colon cancer

Colorectal Cancer Network
http://www.colorectal-cancer.net/

Colorectal Cancer Network offers support groups; aggressive awareness, screening, and early detection programs; and legislative action.

Gynecologic Cancer Foundation
http://www.thegcf.org
The foundation of the Society of Gynecologic Oncologists; works to increase public awareness of gyn cancers; see two other related sites:
http://preventcancer.org/prevention/preventable-cancers/cervical-cancer/ – provides information, screening information on new vaccine for cervical cancer, resource information
http://www.wcn.org/
– Women’s Cancer Network. Information on reproductive cancers, trials, finding a gynecologic oncologist

Life with Cancer
http://www.lifewithcancer.org/

Provides information on coping with cancer.

Lombardi Cancer Center
http://lombardi.georgetown.edu/patient/patient_family/social_work.html
Patient and family support and information regarding cancer.

National Breast and Cervical Cancer Early Detection Program
www.cdc.gov/cancer/nbccedp/index.htm

Online and phone access to free or low-cost mammograms and cervical cancer screening (PAP tests) nationwide and in DC; quick links to basic information on breast and cervical cancer

National Cancer Institute
http://www.cancer.gov/

Information on gov’t cancer initiative & studies

National Cervical Cancer Coalition
http://www.nccc-online.org/

Grassroots patient advocacy organization focused on providing information, support, resources

OncoLink
http://cancer.med.upenn.edu/

Cancer types, specialists, clinical trials

Other Health Information

Agency for Healthcare Research and Quality
http://www.ahrq.gov/

Update of Agency for Health Care Policy and Research created by the Health Care Research and Quality Act of 1999; national news and research on health care quality

American Council on Science and Health
http://www.acsh.org/

“Mainstream scientific information…related to food, nutrition, chemicals, pharmaceuticals, lifestyle, the environment and health”

Braintumor.com
http://braintumor.com/

Information on brain tumors including causes, symptoms, and treatment

Centers for Disease Control and Prevention
http://www.cdc.gov/

Fact sheets, disease prevention and other health info; links to state, local health dep’ts

Department of Health and Human Services
http://www.dhhs.gov/

News from federal health dep’t links to other federal health agencies

Every Woman’s Voice

National Institutes of Health
http://www.nih.gov/

NIH news; links to scientific resources and other health information, such as consumer health publications, clinical trials, hotlines, MEDLINE, NIH Information Index

National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/disorder_index.htm

Lists several neurological diseases in an index and provides information on each

National Organization for Rare Disorders
http://rarediseases.org/

Support for and information on rare disorders

NIH Office of Rare Diseases
http://rarediseases.info.nih.gov/

Information on reports, publications, clinical trials, and more regarding rare diseases

Rareshare
http://rareshare.org/

A website where people with rare diseases can find others with the same condition as them

HELPFUL GOVERNMENT AGENCY LINKS

Agency for Healthcare Research and Quality
http://www.ahrq.gov/

Update of Agency for Health Care Policy and Research created by the Health Care Research and Quality Act of 1999; national news and research on health care quality

Cancer Information Center (CIS)
http://www.cancer.gov/aboutnci/cis
CIS, a program of the National Cancer Institute provides a nationwide telephone service for cancer patients and their families and friends, the public, and health professionals.

Centers for Disease Control and Prevention
http://www.cdc.gov/

Fact sheets, disease prevention and other health info; links to state, local health dep’ts

CDC: Pregnancy Information
http://www.cdc.gov/ncbddd/pregnancy_gateway/

Resource providing tips on how to have a healthy pregnancy and preventing problems during pregnancy. Also provides information on birth defects, family planning and other important articles for future parents.

Department of Health and Human Services
http://www.dhhs.gov/

News from federal health dep’t; links to other federal health agencies

DHHS Office of the Inspector General
http://www.oig.hhs.gov/

Regulatory news, information on government antifraud activities
National Center on Birth Defects and Developmental Disabilities

http://www.cdc.gov/ncbddd/
From the Centers for Disease Control and Prevention, promoting fetal, infant and child development; preventing birth defects and childhood developmental disabilities.

National Cancer Institute
http://www.cancer.gov/

Information on gov’t cancer initiative & studies

National Center for Health Statistics
http://www.cdc.gov/nchs

Comprehensive source for national statistics and trends

National Institute on Aging
http://www.nih.gov/nia

News and health information relating to the elderly

National Institute of Dental Research
http://www.nidcr.nih.gov/

The National Institute of Dental Research, an agency of the Federal Government, is concerned with the causes, prevention, diagnosis, and treatment of oral and dental diseases. It can supply free printed material about oral health during and after cancer treatment.

National Institute of Mental Health
http://www.nimh.nih.gov/

News on mental health issues & current research

National Institutes of Health
http://www.nih.gov/

NIH news; links to scientific resources and other health information, such as consumer health publications, clinical trials, hotlines, MEDLINE, NIH Information Index

Office of Women’s Health: Pregnancy
http://www.fda.gov/womens/registries/default.htm

Information provided by the Food and Drug Administration on topics important to women expecting a child or trying to become pregnant. Some topics include the use of misoprostol during delivery, food safety, use of medications during pregnancy among others.

U.S. Agency for Healthcare Research and Quality
http://www.ahrq.gov/

Provides information and links about patient safety, tips for patients and other general health information.

U.S. Food and Drug Administration
http://www.fda.gov/

Comprehensive info about drugs, medical devices, products & current research

HELPFUL PRIVATE ORGANIZATION AND ASSOCIATION LINKS

American Association for Justice
http://www.justice.org/pressroom/FACTS/health/index.aspx

Includes medical malpractice news.

American Cancer Society
http://www.cancer.org/

Types of cancer, prevention, treatment

American Council on Science and Health
http://www.acsh.org/

“Mainstream scientific information…related to food, nutrition, chemicals, pharmaceuticals, lifestyle, the environment and health”

American Foundation for AIDS Research (AMFAR)
http://www.amfar.org/

Current news articles about HIV/AIDS; includes a treatment directory

American Heart Association
http://www.americanheart.org/

Heart disease and its prevention, treatment, risk factors

Cancer Schmancer Movement
http://www.cancerschmancer.org/

Promotes prevention and early detection of cancer

Joint Commission for International Patient Safety
http://www.jointcommission.org/topics/patient_safety.aspx
The Joint Commission promotes and provides for the delivery of safe, high-quality care through its standards, event database, programs and its National Patient Safety Goals.

National Patient Safety Foundation
http://www.npsf.org/

This Web site Features information about patient safety.

Planned Parenthood
http://www.plannedparenthood.org/

Non-profit organization providing comprehensive reproductive health care services, and promoting research and advancement of technology in reproductive health care.

HELPFUL MEDICAL INFORMATION LINKS

Braintumor.com
http://braintumor.com/

Information on brain tumors including causes, symptoms, and treatment

CANCERLIT
http://www.nci.nih.gov/search/cancer_literature/

National Cancer Institute’s database for literature on more than 90 cancer-related topics

Doctor’s Guide to the Internet
http://www.docguide.com/

Aimed mainly at MDs; posts articles on current medical news, other developments

DrKoop.com
http://www.drkoop.com/

Info on more than 60 health topics

InteliHealth
http://www.InteliHealth.com/IH/ihtIH

Johns Hopkins University site for medical news and information

KidsHealth
http://kidshealth.org/

Provides doctor-approved health information about children from before birth through adolescence.

Mayo Clinic Health O@sis
http://www.mayohealth.org/

Info on medical conditions, medications

Medem
http://www.medem.com/

Set up by 7 physician groups to provide “trustworthy,…high quality” medical info
Medical News Today
http://www.medicalnewstoday.com/sections/medical_malpractice/

Up-to-date medical malpractice news & litigation news articles, including news about lawsuits, legislation, compensation claims, pharmaceutical company disputes and more.

MEDLINE
http://www.ncbi.nlm.nih.gov/PubMed

Search for articles by topic

MEDLINEPlus
http://www.nlm.nih.gov/medlineplus

Info on MDs, hospitals, organizations; medical dictionary; searches by topic

National Patient Safety Foundation
http://www.npsf.org/

Non-profit organization providing patient safety literature, research, policy initiatives and more.

OncoLink
http://cancer.med.upenn.edu/

Cancer types, specialists, clinical trials
Public Citizen Health Research Group
http://www.citizen.org/hrg/

Information on products, medications, and drugs and public health issues

Quackwatch
http://www.quackwatch.com/

Debunks questionable medical ads, products, services, treatments, sources of “advice”

Reuters Health Information
http://www.reutershealth.com/

Latest articles on medical and health topics

HELPFUL DRUGS AND MEDICATIONS LINKS

CenterWatch Clinical Trials Listing Service
http://www.centerwatch.com/

Lists of clinical drug trials, for patients and medical professionals

Food and Drug Law Institute
http://www.fdli.org/

Examines the laws, regulations and policies related to drugs, medical devices, other health care technologies and foods.

Drug Information Database
http://www.nlm.nih.gov/medlineplus/druginformation.html

Search for drug information by generic or brand name

Physicians’ Desk Reference
http://www.pdr.net/

Online version of authoritative medication guide from Medical Economics Co.

RxList-The Internet Drug Index
http://www.rxlist.com/

Search for drugs by name; info on alternative medicine

RxMed-The Website for Family Physicians
http://www.rxmed.com/

Peer-reviewed site with articles and prescribing information on medications

U.S. Pharmacopeia
http://www.usp.org/

Standards for more than 3,700 medications and dietary supplements

HELPFUL PATIENT SAFETY LINKS

Food and Drug Law Institute
http://www.fdli.org/

Examines the laws, regulations and policies related to drugs, medical devices, other health care technologies and foods.

Joint Commission for International Patient Safety
http://www.jointcommission.org/topics/patient_safety.aspx
The Joint Commission promotes and provides for the delivery of safe, high-quality care through its standards, event database, programs and its National Patient Safety Goals.

National Patient Safety Foundation
http://www.npsf.org/

This Web site Features information about patient safety.
Public Citizen Health Research Group
http://www.citizen.org/hrg/

Information on products, medications, and drugs and public health issues

HELPFUL LEGAL LINKS

American Association for Justice
http://www.justice.org/pressroom/FACTS/health/index.aspx

Includes medical malpractice news.

National Conference of State Legislatures
http://www.ncsl.org/standcomm/sclaw/medmaltorttable205.htm
Features chart comparing the medical malpractice laws for all 50 states.

HELPFUL MEDICAL INSURANCE COVERAGE LINKS

Health and Retirement Benefits After Job Loss
http://www.dol.gov/ebsa/publications/joblosstoolkit.html

Offers tips on staying insured after losing a job.